[1] for the Spring Term 2000 graduate course on Information Sources
and Services for Special Populations:
[note: course URL is http://www.sis.pitt.edu/~ellen/lis2333s99.html]
Readings for April 11, 2000: Issues of Ethnicity and CHI: Materials and Services for African Americans; the Highmark Minority Health Link Project
Gollop CJ. Health information-seeking behavior and older African-American women. Bulletin of the Medical Library Association 85(2):141-146 (1997).
Sanders EC 2nd. New insights and interventions: churches uniting to reach the African American community with health information. Journal of Health Care for the Poor & Underserved 8(3):373-5 (1997).
Racial and Ethnic Differences in Patient Ratings of Primary Care Physicians. Research Alert, March 2, 2000. Agency for Healthcare Research and Quality, Rockville, MD. http://www.ahrq.gov/ne ws/press/pr2000/ethnicpr.htm
University of Pittsburgh. Health Sciences Library System. Internet Resources. Minority Health & Cultural Diversity http://www.hsls .pitt.edu/intres/health/minority.html
University of Pittsburgh. School of Information Sciences. Department of Library and Information Science. Highmark Minority Health Link. http://www.sis.pitt.edu/~ellen/highmark.html
[2] Handout from Presentation to University of Pittsburgh Center for
Research in Health Care Weekly Seminar Series, March 2000.
"The Highmark Minority Health Link Project: Meeting Needs
for Internet-based Consumer Health Information for African
American Communities."
Selected Articles on the World Wide Web as a Resource for Consumer
Information
Bader SA, Braude RM. (1998) "Patient Informatics": creating new
partnerships in medical decision making. Academic Medicine
73(4):408-411.
Biermann JS, Golladay GJ, Greenfield ML, Baker LH (1999). Evaluation of
cancer information on the Internet. Cancer 86(3):381-90.
Coiera E. The internet's challenge to health care provision. British
Medical Journal 1996; 312: 3-4
Consumer and Patient Health Information Section, Medical Library
Association. The librarian's role in the provision of consumer health
information and patient education. http://www.njc.org/caphis/caphis_statement.html
Graber MA, Roller CM, Kaeble B. Readability levels of patient
education material on the World Wide Web. Journal of Family Practice
48(1):58-61 (1999).
Health On the Net Code of Conduct for medical and health Web sites
(HONcode) http://www.hon.ch/HONcode/Conduct.html
Jadad AR, Gagliardi A. Rating health information on the internet.
Navigating to knowledge or to Babel? JAMA (1998): 279:611-614.
Kim P, Eng TR, Deering MJ, Maxfield A (1999). Published criteria for
evaluating health related web sites: review. British Medical Journal
318:647-649.
Lewis D (1999). Computer-based approaches to patient education: a
review of the literature. Journal of the American Medical Informatics
Association 6(4):272-282.
Lindberg DAB, Humphreys BL (1998). Medicine and health on the
Internet: the good, the bad, and the ugly. Journal of the American
Medical Association 280:1303-1304.
McClung HJ, Murray RD, Heitlinger LA (1998). The Internet as a source
for current patient information. Pediatrics Jun;101(6):E2
Mitretek Systems - Health Information Technology Institute [and] U.S.
Agency for Health Care Policy and Research. White Paper: Criteria for
assessing the quality of health information on the Internet.
http://hitiweb.mitretek.org/docs/criteria.html
Tetzlaff L (1997). Consumer informatics in chronic illness. Journal
of the American Medical Informatics Association 4(4):285-300.
Wootton JC . (1997). The quality of information on women's health on
the Internet. Journal of Women's Health 6(5):575-81
Wyatt JC. (1997). Commentary: Measuring quality and impact of the
world wide web. British Medical Journal 314:1879-1881.
Selected References from the Library & Information Science Literature
Baker LM, Wilson FL, Kars M. (1997) The readability of medical
information on InfoTrak: does it meet the needs of people with low
literacy skills? Reference & User Services Quarterly
37(2):155-160.
Chatman E. A. (1996). The impoverished life-world of outsiders.
Journal of the American Society for Information Science
47(3):193-206.
Chatman E.A. (1991) Life in a small world: applicability of
gratification theory to information-seeking behavior. Journal of the
American Society for Information Science 42:438-444.
Chatman E.A. (1990). Alienation theory: application of a conceptual
framework to a study of information among janitors, RQ (Reference
Quarterly) 29:355-368.
Chatman, E. A. (1985). Information, mass media use and the working
poor. Library and Information Science Research, 7, 97-113.
Chatman E.A. (1987) Opinion leadership, poverty, and information
sharing, RQ (Reference Quarterly) 26:341?353.
Gollop, C. J. (1997). Health information-seeking behavior and older
African-American women. Bulletin of the Medical Library Association
85(2), 141-146.
Jimison HB, Sher PP. Consumer health informatics: Health information
technology for consumers. Journal of the American Society for
Information Science 46(10):783-790 (1995).
Murray S (1998). Separating the wheat from the chaff: Evaluating
consumer health information on the Internet. Bibliotheca Medica
Canadiana 19(4):142-145. (Summer 1998).
Pingree S. et al. (1996). Will the disadvantaged ride the information
highway? Hopeful answers for a computer-based health crisis system.
Journal of Broadcasting & Electronic Media 40:331-353.
Spink A., Jaeckel G, Sidberry G.. (1997). Information seeking and
information needs of low income African American households: Wynnewood
Health Neighborhood Project. Proceedings of the ASIS Annual Meeting
34:271-279.
---. (1997). Telehealth planning conference looks to technology as a
way of improving health of minority and disadvantaged persons.
National Library of Medicine Newsline 52:15.
Woolridge P, Luster L, Anderson L. (1992) Reading needs of older
adults: a survey. Wilson Library Bulletin 67:41-44.
Wu G, Li J (1999). Comparing Web search engine performance in
searching consumer health information: evaluation and recommendations.
Bulletin of the Medical Library Association 87(4):456-61 [3] For the MAC/Pittsburgh Chapters, Medical Library Association,
meeting, October 4, 1998 "Locating and Evaluating Minority-Sensitive Health
Information on the Internet: A Preliminary Report from the Pittsburgh
Highmark Minority Health Link" ABSTRACT
A team of University-based researchers from the LIS, social psychology, and medical communities is attempting to answer the questions of how people of color will "get on board" to access and use health information, and how these users will judge the qu
ality, authenticity, and value of information resources. We are particularly concerned that the burgeoning group of Internet and Web-based resources which provides consumer health information does not address the needs of people of color. We report the r
esults of preliminary searches which assess the content and quality of research on information seeking by minority communities, and on internet-accessible health information that speaks to the special health needs of minority communities, and we demonstra
te the difficulties that even Web-savvy consumers have in locating health information that is appropriate for a specialized population. We describe a program begun by a group of faculty at the University of Pittsburgh to train minority health information specialists with specific skills in the location and evaluation of minority-sensitive health information on the Internet; this work h
as been funded by Highmark Blue Cross Blue Shield, a major health insurance company in the region. We place this work in the context of both the consumer health information movement and the research on information needs and behaviors of minority communiti
es. For further information, see
Ellen G. Detlefsen DLS
Associate Professor, Dept of Library & Information Science
Core Faculty, Center for Biomedical Informatics
University of Pittsburgh
Pittsburgh PA 15260
TELEPHONE: 412-624-9444
FAX: 412-648-7001
EMAIL:
Nancy D. Washington PhD
Assistant to the Chancellor
Adjunct Assistant Professor of Clinical Epidemiology & Family Medicine
University of Pittsburgh
Pittsburgh PA 15260
Kimberly Calhoun
1998-1999 Highmark Fellow
Department of Library & Information Science
School of Information Sciences
University of Pittsburgh
Pittsburgh PA 15260
Kristina Carlstrom
1998-1999 Highmark Fellow
Department of Library & Information Science
School of Information Sciences
University of Pittsburgh
Pittsburgh PA 15260
Selected References from the LIS Literature
Chatman E. A. (1996). The impoverished life-world of outsiders. Journal of the American Society for Information Science 47(3):193-206.
Chatman E.A. (1991) Life in a small world: applicability of gratification theory to information-seeking behavior, Journal of the American Society for Information Science 42:438-44.
Chatman E.A. (1990). Alienation theory: application of a conceptual framework to a study of information among janitors, RQ (Reference Quarterly) 29:355-368.
Chatman, E. A. (1985). Information, mass media use and the working poor. Library and Information Science Research, 7, 97-113.
Chatman E.A. (1987) Opinion leadership, poverty, and information sharing, RQ (Reference Quarterly) 26:341-353.
Gollop, C. J. (1997). Health information-seeking behavior and older African-American women. Bulletin of the Medical Library Association, 85(2), 141-146.
Pingree S. et al. (1996). Will the disadvantaged ride the information highway? Hopeful answers for a computer-based health crisis system. Journal of Broadcasting & Electronic Media 40:331-353.
Spink A., Jaeckel G, Sidberry G.. (1997). Information seeking and information needs of low income African American households: Wynnewood Health Neighborhood Project. Proceedings of the ASIS Annual Meeting 34:271-279.
---. (1997). Telehealth planning conference looks to technology as a way of improving health of minority and disadvantaged persons. National Library of Medicine Newsline 52:15.
Woolridge P, Luster L, Anderson L. (1992) Reading needs of older adults: a survey. Wilson Library Bulletin 67:41-44.
Selected References from the Medical Literature
Burns R.B. et al. (1996). Black women receive less mammography even with similar use of primary care. Annals of Internal Medicine 125:173-182.
Caraballo, R. S. et al. (1998). Racial and ethnic differences in serum cotinine levels of cigarette smokers. JAMA, 280(2), 135-139.
McCarthy, E. P. et al. (1998). Mammography use helps to explain differences in breast cancer stage at diagnosis between older black and white women. Annals of Internal Medicine, 128, 729-736.
Perez-Stable, E. J. et al. (1998). Nicotine metabolism and intake in black and white smokers. JAMA, 280(2), 152-156.
Selected References on the World Wide Web as a Resource for Consumer Information
Impicciatore P et al. Reliability of health information for the public on the world wide web: systematic survey of advice on managing fever in children at home. British Medical Journal 314: 1875-1879.
McClung HJ, Murray RD, Heitlinger LA (1998). The Internet as a source for current patient information. Pediatrics Jun;101(6):E2
Silberg WM, Lundberg GD, Musacchio RE.(1997). Assessing, controlling and assuring the quality of medical information on the Internet. JAMA 277(15):1244-1245.
Sonnenberg FA. (1997). Health information on the Internet: opportunities and pitfalls. Archives of Internal Medicine 157:151-152.
Widman LE, Tong DA.(1997). Requests for medical advice from patients and families to health care providers who publish on the World Wide Web. Archives of Internal Medicine 157:209-212.
Wootton JC . (1997). The quality of information on women's health on the Internet. Journal of Women’s Health 6(5):575-81
Wyatt JC. (1997). Commentary: Measuring quality and impact of the world wide web. British Medical Journal 314:1879-1881.
Selected CHI References from Recent Popular African-American Literature
Bates, B. L. (1998, July). Black health and fitness: How powerful people stay fit. Ebony, pp. 56-61.
Crute, S. (1998, October). Saving our breasts, saving our lives. Heart & Soul, pp. 79-85.
Curry, G. E. (1998, July/August). Black America’s health crisis. Emerge, pp.32-36.
Kashef, Z. (1998, June). Menopause: Four sisters tell the best ways to move through the best years of your life. Essence, pp. 90-94, 144, 150.
Kondwani, M. J. (1998, September 2). Ethnic differences found in cardiovascular disease risk. Pittsburgh Courier, p. A10.
Nelson, K. (1998, October). Lives on the line: In the war against AIDS, black youth are on the losing side. Emerge, pp. 58-60.
Starling, K. (1998, July). What’s behind the asthma epidemic in black America? Ebony, pp. 62, 65-67.
Walker, N. (1998, July). Walkin’ the calories away. Ebony, pp. 46-50.
Washington, H. A. (1998, June). Infertility crisis defines stereotypes. Emerge, p. 30.
Washington, H. A. (1998, July/August). Will cancer cure reach Blacks? Emerge, p. 28.
For the MAC/Pittsburgh Medical Library Association meeting
Ellen Detlefsen/Kim Calhoun/Kristina Carlstrom
Highmark Minority Health Link, University of Pittsburgh
October 1998
Selected Websites for
African American Health Information
General sites
http://www.blackhealthnet.com/ The Black Health Net pages
NOAH: New York Online Access to Health
http://www.healthfinder.org/justforyou/minority/default.htm
Healthfinder: just for you: minority health
http://www.omhrc.gov/Welcome.HTM
Office of Minority Health Resource Center
http://www.hsls.pitt.edu/intres/health/minority.html
HSLS Health Resources Minority Health & Cultural Diversity
Specific sites
http://trfn.clpgh.org/health/black.html
Three Rivers Free Net: African American Health page
http://www.health.org/pubs/primer/afroamer.htm
National Clearinghouse for Alcohol and Drug Information
Substance Abuse Prevention Primer: African-American Youth
http://www.pci.pitt.edu/aacp/aacp.htm
University of Pittsburgh Cancer Institute
African American Cancer Program page
http://www.diabetes.org/africanamerican/
American Diabetes Association
African American Program
Low literacy sites
http://lib-sh.lsumc.edu/fammed/pted/pted.html
Oregon Health Sciences University Low-Literacy Patient Education Handouts
http://itsa.ucsf.edu/~hclinic/handouts.dir/lowlit.dir/lowlit.html
UCSF Homeless Clinic Low-Literacy Patient Education Handouts
Ellen Detlefsen/Kim Calhoun/Kristina Carlstrom
For the MAC/Pittsburgh Medical Library Association meeting
Highmark Minority Health Link, University of Pittsburgh
October 1998
Sites for Other Minority Groups